Jul 2, 20235 min read

I’m Still Here

I attempt to explain my absence and share how confusing neuro disorders can be.

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Mar 31, 20233 min read

I. The Puzzling Progression of MSA

Part I: Recognizable Progressions These past three weeks have been emotionally more challenging for me. No doubt, my own sense of systems...

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Mar 27, 20233 min read

The Power of a Fist Bump

This morning I was at the gym for my regular workout. Getting there was not easy, to be honest. Today seems to be one of those days that...

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Feb 18, 20233 min read

Dying with Dignity

Warning: This posting addresses the topic of medical assistance in dying (MAID) as a respectful and caring approach to the end of life....

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Feb 13, 20233 min read

Flying Dutchman Syndrome

I hope you have seen any one of the Pirates of the Caribbean (Disney) movies. It will help with the metaphor I am using in this post. ...

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Feb 10, 20234 min read

Being On Guard is Exhausting!

Are there times in the day that you actually relax all your muscles and release the subtle, yet ever present physical tension in your...

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Feb 9, 20233 min read

Living into a disease that takes lives. Hmmm.

Multiple System Atrophy, or MSA, is a rare complex neuro-degenerative disorder that affects around three people in one hundred...

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Live into It

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