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Patient 2 Patient Support & Understanding
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Live into It


"The label doesn't matter. There's no cure."
When a doctor implies that it doesn't matter what ataxia you have because there is no cure violates your right to be fully informed.
Sep 8, 20246 min read
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Our Disease. Our Symptoms.
New research points toward the need for multi-dimensional clinical assessment practices of ataxia.
May 1, 20245 min read
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My Story
A brief summary of my learning of my ataxia diagnosis
Feb 15, 20246 min read
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I’m Still Here
I attempt to explain my absence and share how confusing neuro disorders can be.
Jul 2, 20235 min read
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Do you see what I see?
I thought I would develop a primer for myself and any others who are feeling visually afflicted. How does MSA affect vision?
Feb 25, 20234 min read
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Flying Dutchman Syndrome
I hope you have seen any one of the Pirates of the Caribbean (Disney) movies. It will help with the metaphor I am using in this post. ...
Feb 13, 20233 min read
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